Patient Preferences and Needs

Patient Preferences and Needs projects focus uniquely on the unmet needs of survivors and their caregivers, including how their treatment preferences have changed with the progress in science.

The treatment landscape of non-small cell lung cancer (NSCLC) is rapidly evolving, with the development of genetically targeted therapies and immunotherapy. Since 2015, the US Food and Drug Administration (FDA) has approved 17 new drug treatment approaches for NSCLC.

With this evolution in the science come questions whose answers are important:

  1. How have the needs of patients and their caregivers evolved with the change in science? How do these needs intersect with factors associated with lung cancer diagnosis (such as histology and stage of diagnosis)?
  2. The side effects and toxicities associated with new treatments can be significant. With the emergence of new treatment options for lung cancer, the complexity of treatment decisions for people living with lung cancer has increased. What do patients really want from their treatment? Better quality of life? Extended survival? Other benefits?

Patient FoRCe projects include:

  • Project TransformIn progress
  • Needs assessment of patients with brain metastasis and their caregivers – Conducted in collaboration with the American Brain Tumor Association – In progress
  • Stage III patient needs – Conducted in collaboration with Cancer Support Community – To be started
  • The lived experience and unmet needs of ALK+ lung cancer patients –  Conducted by University of Washington School of Medicine - To be started