Barriers to Clinical Trial Participation

In summer of 2017, LUNGevity Foundation surveyed lung cancer patients and their caregivers about participation in clinical trials. A total of 170 patients and 48 caregivers participated in the survey. Read the full report here.


Major differences were not seen between the responses of patients and caregivers, but of note is that patients most often would like to receive information on clinical trials from patient advocacy groups, while caregivers most often would like to receive information from the patient’s doctor. That only 15% of caregivers reported that they have no decision-making role regarding the patient’s participation in clinical trials indicates how important educating caregivers as well as patients is.

Education gaps:

  • Education on clinical trials that cater to both patients and caregivers
  • Discussion of resources that are commonly available for participation in clinical trial