Resources for Caregivers

These resources have been selected to help you find information on many aspects of living with lung cancer, resources in your area, and specific kinds of assistance. Links to an outside website will open in a new window or tab in your browser.

Support for caregivers

Your Cancer Game Plan, a collaboration between Merck, CancerCare, Savor Health, LUNGevity, and other lung cancer advocacy organizations

Handling Negative Comments During Lung Cancer Treatment: Coping with the Stupid Things People Say with Lung Cancer, by Lynn Eldridge, MD, Verywell.com, updated September 8, 2016

LifeLine Support Partner
Get peer-to-peer support from a fellow caregiver.

Virtual Meetups
Find encouragement, valuable information, and true friendship at our Virtual Meetups, hosted weekly on the Zoom video conference platform.

Lung Cancer Support Community Caregiver Forum
LUNGevity’s online support network includes a caregiver-specific message board. Find support, resources, and safe space to express your feelings.

Caregiver Facebook Group
Find connection, support, and someone who shares your experiences in this private Facebook group for caregivers.

Co-Surviving Cancer
A guide for new caregivers, family members, and friends of adults living with cancer

Caregiver Support
More information on caregiving topics

Coping with Cancer: for Families, Caregivers, and Friends
Information to help caregivers cope while caring for a loved one with cancer, as well as help someone with cancer talk about and cope with the illness

Caring for Someone
Links on preparing to become a caregiver, providing care, and respite

www.Caregiver.com
Caregiver.com provides information, support and guidance for family and professional. They offer a bi-monthly publication entitled Today’s Caregiver. On their site you can find topic-specific newsletters, online discussion lists, back-issue articles of Today's Caregiver magazine, chat rooms, and an online store.

RedCross.org
American Red Cross has developed training programs for family caregivers. You will need to check with your local chapter to find out if there are classes in your area.

www.caregiveraction.org/family-caregiver-toolbox

thecaregiverspace.org/caregivers-toolbox

verywell.com/caregiving

 www.everydayhealth.com/lung-cancer/lung-cancer-caregiving.aspx

Financial assistance

HealthWell Foundation
Assists with copays, premiums, deductibles, and out-of-pocket expenses.

www.CancerCareCoPay.org
The CancerCare Co-Payment Assistance Foundation provides eligible individuals with up to $10,000 per year in co-payment assistance. They currently offer this program to people affected by breast cancer, colon or colorectal cancer, glioblastoma, head and neck cancer, non-small cell lung cancer, pancreatic cancer, and renal cell cancer.

www.NAHHH.org
NAHHH represents organizations that provide lodging (and service) for families receiving medical care away from home; furnishes information about hospitality homes in the caller's area; offers newsletter; and publishes an annual directory of facilities offering lodging. 

www.PatientTravel.org
Family caregivers can receive help in locating air transportation for needy patients who need distant specialized medical evaluation, diagnosis or treatment. This service of Mercy Medical Angels provides referrals to all major medical transport providers in the network.

www.benefitscheckup.org
A service of the National Council on the Aging, Benefits Check-Up and Benefits Check-UP RX help people over the age of 55 find federal, state, and local public and private programs that may pay for some of their medical care and/or prescription costs.

Co-Pay Relief (Patient Advocate Foundation)
Covers the cost of physician-prescribed genetic and genomic tests for cancer for patients who meet eligibility criteria.

Financial Treatment Program
Get financial education, planning, and resource navigation you need to help manage your finances during cancer treatment with the Financial Treatment Program.

Cancer Financial Assistance Coalition

Pharmaceutical assistance

RxAssist (www.RxAssist.org)
Offers a comprehensive database of these patient assistance programs, as well as practical tools, news, and articles so that health care professionals and patients can find the information they need

Partnership for Prescription Assistance (www.PPARX.org)
Brings together America’s pharmaceutical companies, health care providers, patient advocacy organizations, and community groups to help qualifying patients without prescription drug coverage get free or low-cost medicines through the public or private program that's right for them

NeedyMeds (www.NeedyMeds.org)
A website of free information on programs that help people who can't afford medications and health care costs

CancerCare Copayment Assistance Foundation (www.CancerCoPay.org)
A nonprofit organization dedicated to helping patients afford their copayments for chemotherapy and targeted treatment drugs

 

RxHope.com
Patient Assistance Programs

Patient Access Network Foundation

Nutritional support

Savor Health
Dedicated to making the lives of cancer patients and their caregivers easier and less stressful by providing services that relieve them of the significant time, energy, and worry associated with ensuring proper nutrition for themselves and their loved ones

Housing and utility assistance

Making Home Affordable (US Department of Housing and Urban Development)
Helps homeowners get mortgage relief and avoid foreclosure

Home Ownership Preservation Foundation
Independent national nonprofit dedicated to guiding consumers onto the path of sustainable home ownership and improving their overall financial health

Assisted Living Options for People with Disabilities
Covers information on supportive living options as well as sources of financial support

Low Income Home Energy Assistance Program (LIHEAP)
Provides heating and cooling assistance to roughly 6.7 million households

Legal/employment assistance

Triage Cancer
A national nonprofit organization that provides education on the practical and legal issues that may impact individuals diagnosed with cancer and their caregivers, through free events, materials, and resources.

Cancer Legal Resource Center
A national program of the Disability Rights Legal Center. Provides information and education about cancer-related legal issues to the public through its national telephone assistance line and online assistance form, as well as a library of free online fact sheets, webinars, and other publications. Download the CLRC’s Patient Legal Handbook here.

LawHelp
Helps people of low and moderate incomes find free legal aid programs in their communities, answers to questions about their legal rights, and forms to help them with their legal problems

US Equal Employment Opportunity Commission
Enforces federal laws that make it illegal to discriminate against a job applicant or an employee because of the person's race, color, religion, sex (including pregnancy), national origin, age (40 or older), disability, or genetic information

Job Accommodation Network
A source of free, expert, and confidential guidance on workplace accommodations and disability employment issues

Cancer and Careers
Empowers and educates people with cancer to thrive in their workplace by providing expert advice, interactive tools, and educational events

Finding lodging near treatment centers

Joe's House
Website listing thousands of places to stay across the country near hospitals and treatments centers that offer a discount for traveling patients and their loved ones

American Cancer Society Lodging Program
The American Cancer Society, in a cooperative effort with hotels across the country, provides overnight accommodations to cancer patients who must travel for outpatient treatment and need assistance with lodging

National Association of Hospital Hospitality Houses, Inc. (www.NAHHH.org)
An association of more than 150 nonprofit organizations located throughout the U.S. that provide family-centered lodging and support services to families and their loved ones who are receiving medical treatment far from their home communities

Medical equipment

Medicare
Enter your zipcode to find suppliers of the following medical equipment and supplies

Camps and respite services

Camp Kesem
Provides summer camp experiences for over 3,800 children across the country who have been affected by their parent’s diagnosis of cancer

First Descents
Offers young adult cancer fighters and survivors a free outdoor adventure experience designed to empower them

ARCH National Respite Network
A service to help caregivers and professionals locate respite services in their community

Transportation

Air Charity Network
Provides people in need with access to free air transportation to specialized health care facilities or distant destinations due to family, community, or national crisis.

Air Care Alliance
A nationwide league of humanitarian flying organizations whose volunteer pilot members are dedicated to community service. Includes a listing of volunteer pilots or an aviation charitable group by location.

Angel Wheels to Healing
Dedicated to providing non-emergency, long-distance ground transportation to financially stressed ambulatory patients who are traveling for treatment

Corporate Angel Network (www.CorpAngelNetwork.org)
Helps to ease the emotional stress, physical discomfort, and financial burden of travel for cancer patients by arranging free flights to treatment centers, using the empty seats on corporate aircraft flying on routine business

National Patient Travel Center
Provides information about all forms of charitable, long-distance medical transportation and provides referrals to all appropriate sources of help available in the national charitable medical transportation network

Road To Recovery

Other services

Dental Lifeline
Provides access to dental care and education for people who cannot afford it and who have a permanent disability, are elderly (age 65 or older), or are medically fragile

Eye Care America
A public service program of the Foundation of the American Academy of Ophthalmology that provides access to medical eye care

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