Kenneth Lourie

A few weeks back at my last post CT-scan appointment with my oncologist (when all continued to be amazingly stable), he finally asked me the question I've been wondering if he'd ever ask: "Mr. Lourie, I talk about you all the time, how well you're doing; is there anything I can tell people about what you're doing that might help them?"

My first reaction was to laugh and then ask if I even have cancer. I mean, typically, one diagnosed with an incurable disease doesn't just live life merrily along as if the diagnosis was a mere inconvenience, no matter what he or she may or may not be doing. My oncologist assured me that I indeed have cancer and even offered up some news about my tumors with which I was totally unfamiliar. Five years ago when I was hospitalized (due to excessive fluid in my lungs), in the course of the procedure, the thoracic surgeon did a DNA profile of my tumors to determine if I had a specific mutation (allowing for more targeted treatment). Unfortunately, the ALK and ROS-1 mutations were not confirmed. In pursuit of more current information, more recently, I had a liquid biopsy (a blood test) which tested for the EGFR and T790 mutations. Again, no confirmation. As it stands now, I am as unclassified. For the nine-year moment then, I remain in treatment without the targeted precision so many of my fellow cancer survivors have been extraordinarily fortunate to have. Yet life goes on.

So what am I doing? Other than laughing in the face of death (my best attribute), which if anecdotal reports are to be believed, truly is the best medicine, a bit more. Remaining positive and generally upbeat is a parallel corollary to humoring yourself and those around you. But more specifically and perhaps uniquely, I am supplementing my standard of care with some non-Western care: alkaline water, organic apple cider vinegar, and about 60 pills a day, most chosen for their qualities of strengthening my immune system and/or eliminating the toxins from my body. I can't say I'm eating really right, but neither will I admit to not eating totally wrong. Reducing stress and exercising are popular advisories in my control. One out of two will have to do.

However, as I told my oncologist, whatever I'm doing I've been told to do by my holistic health and fitness coach. She knows what, how and why. (I might as well be Sergeant Schulz from "Hogan's Heros: "I know nothing.") I don't feel qualified to speak to any of what I do. Yes, I've survived, but I'm a sports and chocolate guy, not a science and medicine man. All I can do is list what I'm doing. I can't chapter and verse any of it. I'm not NIKE, but I just do it. It's a routine and I rarely stray. I do add stuff occasionally, but to think any of what I do might have a bearing on another cancer patient's survivability? Not hardly, and that's what I told my oncologist. Dina suggested the alkaline water. I suggested my "coach."

I guess I'm just not that deep of a thinker. I trust people the same way that as a salesman I want them to trust me. I'm not leading anybody astray, and I'm providing them the best available knowledge. I'm not manipulating. Nor am I maneuvering. I'm simply managing dos, don'ts, maybes, what ifs and why nots. Moreover,  I'm trying to think outside the box while respecting and appreciating that the box has purpose as well. Heck, for all I know, my non-Western stuff has had minimal impact on my life expectancy and the standard of care from my oncologist has provided the most. Maybe I'm just an anomaly, pure and simple: a nine-year-plus non-small cell lung cancer survivor. What am I doing? Trying not to abuse the privilege, that's what.

Kenneth Lourie"This column is my life as one of the fortunate few, a lung cancer anomaly: a stage IV lung cancer patient who has outlived his doctor’s original prognosis; and I’m glad to share it. It seems to help me cope writing about it. Perhaps it will help you relate reading about it."

Blog category: 
Living with lung cancer


Great attitude and great blog!

Beautifuly said!!! I wish my oncologist would ask the same!! I hope to meet you someday!

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