Kenneth Lourie

Though I want to treat the disease—and my having been diagnosed with the disease—with respect, I don't want to treat it with the utmost reverence. I mean, it's not the Pope. It's an affliction, not an affection. Certainly not one worth embracing anyway. But definitely one that needs engaging. Treating and living with lung cancer shouldn't be a vertical-type, up or down, either-or set of options. There should be more integration with non-Western, holistic, and alternative approaches rather than, as has been my experience: you're on your own; and your oncologist, generally speaking—or potentially legally liable from speaking—knows/says less about it than you the patient.

I've tried to straddle this line going on nearly nine years now. Adhering to the conventional wisdom/treatment didn't seem like enough. Perhaps hearing the extremely grim prognosis that I received on Feb. 27, 2009 : "13 months to two years," affected my thinking. Perhaps hearing the equally grim likelihood - statistically referencing, of living beyond five years (low single digit percentage); heck, even living beyond two years, might have given me pause as to what course of treatment: chemotherapy, I was starting and why. But what did I know? I had just been blindsided and then bewildered as to why and how I was going to live the rest of my life.

Yet here I sit, nine years old, so to speak. Some days I believe my amazing good fortune has to do with the treatment and care I've received from my oncologist and staff at the Infusion Center. Other days, I think it has to do with some of the alternatives I've assimilated into my life. Though I can't honestly include exercise in that life, I have modified my diet somewhat and most definitely can mention vitamins, supplements, alkaline water, and apple cider vinegar, among a few others; along with a positive attitude with mostly good humor, as important elements. It hasn't been easy, but it has been me. Meaning, I am proud of how I've managed a bad situation and so far, not made it worse.

Though I am somewhat unique, statistically measuring, in how long I've survived (however, I'm not exactly 108-year old Paul Edgecomb/Tom Hanks from the movie "The Green Mile"), I don't know that the varied steps I've taken and the humor and attitude with which I've put one foot in front of the other are likewise unique. Of the many patients/survivors I've met along this way, many, if not all, have exhibited similar good humor and more of a can-do attitude quite frankly, than I. I've always been happy to make their acquaintance and eager to hear their stories, as they have been interested in hearing mine. Although cancer is not exactly catchy, I've found that, in speaking/sharing with fellow cancer survivors, what goes around comes around. And what 'that' is that is going around is, to invoke The Beach Boys: "Good Vibrations," and that is catchy and healthy too!

When I was first diagnosed - and caught up in my own circumstances, I was not interested - too much, in interacting with other lung cancer patients/survivors. I was more concerned with my own fragile emotional state and was afraid that exposing myself to more bad news: other "terminal" lung cancer patients' stories would weaken my resolve. 

I don't recall how many months or years it was before I realized how wrong I had been. Weaken? My involvement with fellow lung cancer patient/survivors has only strengthened my resolve. Has that openness and appreciation for my fellow lung cancer patient extended my life? I'd like to think it has. But if it hasn't, I guess the jokes on cancer. And that's a laugh with which we can all live.

"This column is my life as one of the fortunate few, a lung cancer anomaly: a stage IV lung cancer patient who has outlived his doctor’s original prognosis; and I’m glad to share it. It seems to help me cope writing about it. Perhaps it will help you relate reading about it."

Blog category: 
Living with lung cancer


I am just approaching the two year Mark with my stage IV and although the chemotherapy and radiation multiple surgeries have taken their pound of flesh my attitude of Strong Like Bull, you are either all in or not. On Opdivo now and just greatly appreciate waking up each day. I don't look in that tiny rearview mirror. Best to you, Susan

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