* Login   * Register * FAQ    * Search
It is currently Thu Oct 02, 2014 8:27 am

All times are UTC - 6 hours

Post new topic Reply to topic  [ 21 posts ] 
Author Message
PostPosted: Fri Dec 28, 2007 5:03 pm 
User avatar

Joined: Fri Mar 16, 2007 8:26 pm
Posts: 675
Location: Deep South Georgia
Last night my baby girl passed away. She was a beautiful 12 year old dachshund. I don't really know exactly what happened--she had been having seizures. We think it had to do with her heart--she had a murmur. She went to be with Mom and Dad...I know that, but I need her here. And I need my Mommy. Nevermind that I'm 34 years old. I have a big 'ol water leak and haven't gotten the plumber bill yet.

Mom: SCLC 6/7/40-11/28/07
Dad: Renal failure 1/21/35-12/13/06
*Living forever in my heart.*

 Post subject:
PostPosted: Fri Dec 28, 2007 6:51 pm 
Senior Member
Senior Member
User avatar

Joined: Tue Mar 14, 2006 4:47 pm
Posts: 2360
Location: Chicago Suburbs

I'm so sorry about your little girl. The hits just keep on coming, huh? :cry: I can't believe how things seem to happen one on top of another. We lost our pup 2 mos before my husband passed. It is so hard.

I'm sending warm hugs your way tonight.


Carepages.com for Tony's journey, Named: TeflonTony
Beloved Husband - 67 (at diagnosis - made it to 70 1/2) - non-smoker/23 years, night sweats, coughing up blood & very SOB. Oxygen 24/7. Lung capacity 50%, blood/ox levels 88%. TB Test, Broncoscopy, CT, PET Scan
- 3-28-05 Wedge section biopsy Dx'd NSCLC Adenocarcinoma Stage IV. Primary tumor 3 x 5 cm, extensive mets both lungs. Mediastinum, hilar, lymph node & supraclavicular involvement. Histologic grade: Poorly differentiated Emphysema also.
-4-05 PLAN A -Chemo TAXOL/CARBOPLATIN - 8 CYCLES(full strength dose)- 21 day cycle APRIL-AUGUST 2005

- PET & CAT in May & Aug. 2005 show marked reduction.
- Cycle 8 - Second severe carboplatin reaction - no more platinum based drugs
- PLAN B - New chemo - TAXOTERE/GEMZAR - 12 CYCLES (full strength dose)- 21 day cycle. SEPT 2005-MAY 2006
(22 actual chemo sessions in 12 cycles) Both drugs day 1 & Gemzar only day 7. Fatigue, high fevers, fingernail changes, & mouthsores. Procrit & Neulasta started during Cycle 3 (as needed).
-11-7-05 CAT & PET - more improvement. Large mass now 3.6 x 2.7 cm with less uptake. One small tumor in each lung.
-2-2-06 - PET & CAT scans show large mass down to 2.6 x 3.2 cm with lower SUV. R Lung clear. Areas of scarring in both lungs. Tumor in mid-left lung has grown.
-3-7-06 - 15 RADIATION TREATMENTS to nuke the tumor in mid-left lung while continuing chemo. (Chemo 9b skipped)
-5-16-06 - Cycle 12a finished. Trouble breathing, skipped 12b. Allergic reaction to long term use of taxotere. Severe fluid retention everywhere. Oxygen 24/7 continues.
-5-22-06 - CAT & PET Scans. Radiated tumor gone, primary mass unchanged. More scarring, thickening, etc.
***CHEMO HOLIDAY for 3 mos
-6-6-06 - 1-3-07 - PLEURAL EFFUSION ISSUES - 14 Thoracentesis done ranging from 500-1300 cc's on both sides. No cancer cells ever found in any of the taps.
-8-28-06 - PET & CAT scans."Significant progression." Primary tumor larger and seven new tumors found in both lungs. Higher SUV uptake levels then initially.
-9-1-06 - PLAN C - TARCEVA 150 mg daily begins.
-11-16-06 PET/CAT scans. Tarceva didn't do squat. Disease progression. Some lung tumors same size, growth in old tumors, many new tumors in both lungs (about 17). All are over 1+ to 3+ cm. SUV higher on all (high being 12.1). New uptake in R-iliac and L-Scapula. Increased adenopathy in L-hilum with corresponding uptake. First time cancer has left his lungs. Crap.
-11-29-06 - Port installed.
-11-30-06 - 4-2-07- PLAN D - 19 WEEKLY NAVELBINE INFUSIONS Neupogen/Procrit (as needed) Zometa for bones every 4th treatment. Night sweats & some fatigue.
-2-2-07-PET/CAT scans. Overall improvement with decreased number & SUV activity in most of the lung tumors. All but one are smaller. Bone mets are better. Empty head too. Effusion issues cleared up! Praise God for prayers answered.
-3-28-07 - TWO YEAR ANNIVERSARY SINCE DX and now 70 years old!
-4-5-07 PET/CAT scans - Mixed results w/progression. R-lung tumors are still shrinking, bone mets are gone, two large areas in L-lung are stable. Progression in a tumor in the L-lung has increased in size & intensity and a larger area of new growth (3.9 x 2.4 cm) w/SUV 11.9 in subcarinal region. Need new chemo plan.
-4-18-07 - 7-9-07 PLAN E - 5 cycles ALIMTA - 21 day cycle (Zometa still every 4 weeks)
Alimta has proved to be more challenging then we hoped. Crud. Fatigue, increased SOB & cough (some blood). Counts are good. Fevers/sweating episodes. Still on Oxygen 24/7.
-6-15-07 - CAT/PET scan results -- mixed bag, but overall stable. Some tumors have grown, none have shrunk, some are somewhat higher uptake values, several are somewhat lower. Bone mets still gone & no liver involvement. Dealing with 7-8 lung & mediastinum tumors, 3+ cms on most. Doc says continue with Alimta as the cancer is not running totally amok.
7-18-07 - Week from hell. Crisis SOB, cough, on antibiotics, fevers/sweats, very bad. Pleural effusion tapped. Partial collapse of upper R-lung.
7-19-07 - X-ray -R-lung almost reinflated, bottom of L-lung is collapsing from pleural effusion. Wait to tap L-side until R-lung fully inflated. Coughing & SOB still bad. Hospital/Doctor visits are now in a wheelchair.
-7-24-07 - Onc. visit. Obvious symptomatic progression.
-7-30-07 - 8-27-07 PLAN F - 2 CYCLES salvage GEMZAR -21 day cycle days 1 & 8
-8-2-07 - CT scan shows L-pleural space loculation & tumor progression. One tumor is now encasing pulmonary artery. SOB worse.
-8-6-07 - Doc appt. Still very SOB, but tolerates Gemzar well. Onc does not want to do radiation. More harm than good. Pray it works.
-8-9-07 - Breathing issues escalate. Reluctantly went to hospital as both docs are out of town. Infection in L-lung. Re-confirmed tumor progression. Main bronchial tubes still open. Home on 8-12. That was a waste of time.
-8-15-07-Onc. visit. Continue Gemzar. Scans after next cycle. Weight & r-side fluid somewhat stable.
-9-4-07 - Wait on scans for another cycle. Hgb up to 11.1 Yay!
-9-10-07 - No chemo. Gemzar stopped, not working. Weight is plummeting.
-9-11-07 - Echo Doppler test on heart. Results normal. Pulmonary artery difficult to detect on this type of test.
7-18-07 - 10-2-07 - PLEURAL EFFUSION ISSUES AGAIN - 9 Thoracentesis done ranging from 600-1600 cc's on both sides. Loculation in upper half of L-pleural cavity. Lasix to try to reduce fluid & help breathing. Toward the end, fluid was bloody on L-side and contained poorly differentiated adenocarcinoma malignant cells.
-9-12-07 - Dr. appt. Discussed options, had "the talk." Tony chooses to continue treatment. On we go.
-9-17-07 PLAN G - IRINOTECAN (aka CAMPTOSAR, CPT-11) AS OF 10-9-07 - 2 CYCLES COMPLETE. - 21 day cycle.
-10-3-07 - (And now for something completely different...) Hgb down to 8.3. Need transfusion. Heart rate went nuts, 180 & into atrial fibrillation 1 1/4 units into transfusion. ER 5 hours - controlling with meds - home.
-10-9-07 - Chemo
-10-10-07 - 10-12-07 - Gasping for breath, falling down, refuses to go to hospital. Finally called ambulance against his wishes to get him morphine to calm breathing, meds to straighten out A-fib, antibiotics for lung infection & 15 liters of oxygen vs. the 4 at home. Walked down the stairs 2 hours before ambulance was called. Fought til the end...
-10-12-07 - 6:14 pm CDT - My beloved Tony is with God in Heaven.

Never cancer free since diagnosis, never missed a treatment -- Tony was a cancer Warrior.
"How do I live without you, I want to know --How do I breathe without you...." - LeAnn Rimes
"And I'll try, oh Lord, I'll try, to carry on..."- Styx

 Post subject:
PostPosted: Fri Dec 28, 2007 7:13 pm 
Senior Member
Senior Member
User avatar

Joined: Sat Mar 05, 2005 6:12 pm
Posts: 2789
Location: Rockford IL
Oh, honey, hugs and hugs and hugs.
I am so sorry.

Brian 6-4-48 - 1-1-06
Brian dx w/ NSCLC w/ nueroendocrine features/adenopathy, & mets to liver following routine Chest x-ray >>>> CTScan,needle biopsy,PET/CT fusion scan.(2-2005)
Lung tumor inoperable due to location. Radiation not an option due to Liver met. No discussion relative to prognosis......
3/2/05 1st cycle Cisplatin / VP16 - Tolerated fairly well.
3/23/05 2nd cycle - really knocked Brian for a loop. Lots of nausea and weakness.
4/5/05 scan 4/13/05 (onc visit/results/begin 3rd round:mixed news: reduction in tumor sizes TX plan: 2 more rounds of Cisplatin/Vp16 Weekly labs to watch low hmglbn (injections prn)
4/20/05 Brain MRI (Bri joins empty head club!)
4/27/05 Portacath installation
5/4/05 4th round cpltn/VP16 much difficulty w/ side effects.
5/10/05 scans show no further reduction of lung or liver tumors.
5/25/05 5th cycle Cis/VP16 postponed till 5/31/05 (need time to rebound a bit) round 5 was rough: exhaustion, labored breathing, fever, anxiety.
6/23/05 Doc appointment to address above and okay Tarceva start. Lung Xray done to check for pneumonia as possible explanation for fever.
6/24/05 Begin Tarceva 150mg daily.
next scheduled onc appt or PRN for 8/4/05
6/27/05 OOPS PRN came sooner rather than later>call from onc: chest film showed lung tumor growing quickly
6/27/05 CT scheduled for 7PM
6/30/05 Bad news per CT: progression. Brian is too weak for more chemo so praying that Tarceva will halt growth while Brian gathers strength to fight on.
8/4/2005 onc appt:Bad news Rapid progression. Off Tarceva.
8/4 began Carboplatin/CPT-11 Praying!
9/1/2005 Chemo had been postponed due to low white blood cells, but began again today.
9/8/2005 next infusion
Brian is very ill, problems w/ voice. Scans & Visit moved up:
9/16/2005 CT Scan
9/19/2005 Onc says scans show significant reduction in tumor volume. Plan is to continue CPT 11 alone for 3 more weeks then 2 weeks off so Brian can gain strength for family wedding in FL on 10/22/05. Carboplatin has to be stopped due to progressing nueropathy.
10/17-19/05 Bri hospitalized with abdominal pain and fever.
10/20-24/05 FL for wedding (Brian was really too sick to go, but we realized that too late)
10/27/05 Scans taken during hospitalization show remarkable progression of disease. Brian begins Alimta and Sandostatin.
He is very ill and spending more and more time in bed.
11/10/2005 No more Alimta. Liver enzymes out of control. More progression. He is receiving Navelbine and low doses of Carboplatin. Brian continues to trend downward.
12-22-05 Onc says no more tx. Brian is too weak.
12-24-05 Hospice called in.
1/01/06 Brian is called Home.
Brian's love remains a great gift. I miss him like fire.

 Post subject:
PostPosted: Fri Dec 28, 2007 7:45 pm 
User avatar

Joined: Thu Jan 27, 2005 7:10 am
Posts: 8532
Location: Greensboro North Carolina
thoughts and Prayers and condolences. know it is hard right now. I lost My Daisy 15 months to the day after Deb passed. I know how hard it is.....

April/03 My Wife Deborah, age 46, diagnosed adenocarcinoma NSCLC
1/20/2006 Admitted to hospital Respiratory distress
1/23/2006 Ran to the light and is waiting for us to be rejoined in the Kingdom Of Heaven Her journey is Over but mine lingers on for Now!!!
4/23/07 DEb is joined in Peace by her Puppy Dawg Daisy from Cancer
8/30/07 Got new Pup named Mocha!!

"No matter hnow much it hurts, No matter how alone you feel, Your friends will help you get through anything!!"
Scrubs!!!!Yes the comedy show!!!

The Reason I advocate
If you would like to see our family photos Click on this link!

My memory-of Link is good to go now if you want to see it!!

 Post subject:
PostPosted: Fri Dec 28, 2007 9:39 pm 
Director of Support & Advocacy, LUNGevity
User avatar

Joined: Thu Jan 09, 2003 11:09 am
Posts: 15199
Location: Texas
I'm so sorry.

- Katie Brown, Co-Founder of LCSC- Director of Support & Advocacy

18 yr cancer survivor.
Certified Patient Navigator

In memory of Jessee Dewey, SCLC
December 29, 1938 - September 6, 2003
Lisa Dewey- Jan. 22, 2007

my parents are together in heaven

facebook http://www.facebook.com/lungevity

 Post subject:
PostPosted: Fri Dec 28, 2007 10:20 pm 
User avatar

Joined: Sat Oct 28, 2006 10:44 pm
Posts: 76
Location: Fair Oaks, CA
I'm so sorry. Things have to be better in 2008. Hugs to you. Michele

My dad was 63 at diagnosis (January 31st, 2006) NSCLC stage IIIB/IV. He passed away on his one year anniversary (January 31st, 2007) I miss him so much. Until we meet again Daddy- I love you!

 Post subject:
PostPosted: Fri Dec 28, 2007 10:32 pm 
User avatar

Joined: Thu Oct 11, 2007 8:31 pm
Posts: 521
Location: Nebraska
That is so sad. It is one thing after another. I bet your baby dog is happy to see your parents though.

Husband, Rod, was diagnosed with NSCLC Squamus cell in July 2007.
He had leg pain starting in Dec 2006 but thought it was related to the torn cartilage in his right knee. He had the pre-op and knee surgery was done in March 2007.
Legs still hurt long after, Dr. didn't make him come in just kept prescribing pain meds. During my visits to my therapist she felt he was dealing with depression from pain, and the horrible tornado we experienced in May 2004, and to get him in to my Dr. to be evaluated.
6/12/07 Saw my Dr. D., she ordered his pre-op records from his first Dr. Put on Wellbutrin
6/29/07 Dr. D. Called me at home and said he had lung cancer.
7/5/07 Go to pulmonologist. scoped his lung, took a biopsy, it ended up Stage IV, NSCLC
7/23/07 1st visit with onc., Rod also has emphysema
7/25/07 MRI,Ultrasound, PET scan, cancer had mets to some ribs and most vertabrae
7/27/07 1st Chemo Avastin, Taxol, Carboplatin, Zoledronic repeat every 3 weeks. Given shot of Neulasta after each session. Tumor 33% smaller.
Main problem all along is terrible bone pain, legs and lower back. Then his right hand became almost useless, he would write at work with two hands. Dr. determined it is the Taxol. Stayed on Taxol, hand has since improved.
9/27/07 4th session of chemo finished, first cycle,
now on 5 week break, will have CT scan on 10/26, results appt. on 10/31.
Last two weeks at lab appt. he had low red blood ct. and was given a shot.
He takes 320mg oxycontin 12 hrs. apart with Oxydose for breakthrough pain. Also meds for cough.
Told to take a nice trip and make memories. He is in too much pain and doesn't like to travel.
10/26 CT scan
10/31 met with onc. tumor has grown some. sugg. hospice at home. Not ready for that, more treatment requested.
Told to quit driving bc of narcotics and consider cutting back hours.
Chemo today, Gemcitabine, Zometa,Decadron something else???
11/1/07 CT scan on legs, xray of legs, one positive for cancer, the other not positive
11/8/07 Dr. appt. Feet, legs very swollen, should have been wearing thigh high compression socks, ankles too swollen to get fitted, will measure again when less swollen. Has celulitis in feet, is that fungus? Also has "raging sinus infection". RX for fungus meds and antibiotic, no chemo. Re-stated need to stop driving. Rod took it as a suggestion previously. Will stop driving. Will cut back hours.Had a ct scan of head to dx sinus infection for sure and see brain.
11/12 no mets to brain, is a sinus infection, feet look so much better, had mri on leg to see what pain is from for sure, I can't believe how he has deteriorated since last week. We are not working this week.
11/13 met with onc. no more chemo, it would take his life sooner. Hospice is coming out to visit with us today.
11/15 signed up for Hospice, began morphine
11/17 as Jeff and I talked to Rod about Heaven, he would smile, there had been no responses before that for about 12 hours. I know the Holy Spirit revealed the Lord Jesus to him.
11/19 In peace and love, Rod is resting in the arms of Jesus.
12/8 and I am so unbelievably miserable

 Post subject:
PostPosted: Sat Dec 29, 2007 12:07 am 

Joined: Fri Jan 10, 2003 10:07 pm
Posts: 1644
Location: Burlington County, South Jersey
We lost our beloved dog this summer after 13 years, and we still miss him terribly. This was our first Christmas in the house without him. here are 2 websites that I found that helped immensely. I hope they help you like they did me.




NSCLC BAC 4/01 Stage 1A
non-smoker for 17 years
breast cancer 1997: mastectomy/chemo
breast cancer 1993: lumpectomy/radiation
Both stage 1

Avatar picture - my guys at my 50th

 Post subject:
PostPosted: Sat Dec 29, 2007 1:21 am 
User avatar

Joined: Fri Nov 10, 2006 8:21 am
Posts: 1050
Location: Los Angeles
I too am so sorry -- my dog is a major member of my family, and I know how deep that loss is.


In loving memory of my best friend, soul mate and hubby, Bill (aka "bware21").
You are my most favorite person -- forever.

July 17, 1952 - July 16, 2007
(Ext. SCLC)

"Every good thing given and every perfect gift is from above, coming down from the Father of lights, with whom there is no variation or shifting shadow." - James 1:17

 Post subject:
PostPosted: Sat Dec 29, 2007 2:41 am 
Legacy Member
User avatar

Joined: Sun Sep 10, 2006 6:26 am
Posts: 2542
Location: Hawaii
Your loss is huge, and there are many, many here who do truly understand. No one in our family has really recovered from the loss of our golden 10 months ago, and I doubt if we ever will. But our love for the species is boundless and we have plenty to lavish on the next dog who enriches our lives.

With our family's Aloha,


Ned is just my nickname, though it would be nice to merge it with the other meaning eventually...

Aloha means "Hello, goodbye, love, compassion, welcome, good wishes." It means belonging to others with a common humanity. It's defined better as a feeling in the heart than by words.

Dx NSCLC adenocarcinoma IIIb Sep 2006, now stage IV. Taxol+Carboplatin+Avastin 4 mo., Avastin 8 mo., Tarceva 16 mo., Alimta 12 mo. (sometimes combined with Cisplatin or Carboplatin), Navelbine since Feb 2010, 10 sessions of WBR in March 2011. See My Cancer Journey: viewtopic.php?p=351369#p351369 — UPDATED 03/05/2011.

Above left: Our golden retriever Rosie, who joined the family on 3/5/08 at the playful age of 2.

Below: Hannah, our golden companion 1994-2007.


 Post subject:
PostPosted: Sat Dec 29, 2007 7:22 am 
User avatar

Joined: Sun Mar 25, 2007 4:20 pm
Posts: 743
Location: Florida
I'm so sorry. :cry:

My Husband's battle with SCLC.....Picture is of Harry before diagnosis.....

January 07-Doctor ordered a Cat Scan due to cough and pain in ribs. Sent us to the Pulmonologist.
Late January- Biopsy taken. Results show SCLC, inoperable.
Sent to Moffit Cancer Center in Tampa.
End of January '07 -started first chemo treatment. Ended up in ER after about 5 days with dehydration.
Feb 23rd '07 - second round of chemo, ended up IN the hospital for 2 days with a bladder infection.
March-'07 Third round of chemo. Also started radiation twice a day, 5 days a week.
April 10th,'07
Harry is in the hospital with a very bad infection in his heart valve. On liquid diet now because radiation has burnt his esophagus.

May 11th, '07- new scan and MRI results were good. Cancer/tumor has shrunk about 60%. Head is still clear.
June 8th, '07
Harry started first infusion of Carboplatin.
June 15th, 07..... Harry is in the hospital again. Has an abscess on the wall of his intestines. He's lost 7 more pounds. Blood counts are terrible.
June 27th, 07
Harry remained in the hospital for 7 days, (once again).
He is now passing out when he stands. He's been put on a new medication to raise his BP a little, plus help him retain fluids. Hoping it works, because he's bruised and cut from falling.

July 26th, 07- New Cat Scan results show that the original tumor has grown, and there are also new areas involved near ribs and higher in the left lung.. Will start Taxol, to "control" growth.
August 07
MRI came out clean. Thank you, Lord.
Lung tumor has some shrinkage, but some new growth in different areas. Mixed bag of results.

2nd dose of Taxol given.
Cat scan results were fairly stable.
He will continue on the Taxol, another 4 rounds. Blood counts were good.
Nov. '07
Harry had his last dose of Taxol. He won't get the 6th dose, due to numbness and tingling in his feet.

New scan done on Jan. 7th, '08
Shows Mets to liver in several spots. New tumor in lung, and more fluid.
Started Cpt-11 once a week.
Doctor mentioned Hospice. It was declined. Harry went fishing the next day. :O)
March '08
Harry now has Mets in his liver, ribs,shoulder, arm and more nodes.
He's on strong pain medication. Mostly sits in his chair and sleeps. His fighting spirit still remains, and he chooses to continue treatment.
April 8th, 08
Radiation doctor states that there isn't much more they can do. Harry has been given a "6 months or less" prognosis .
Harry has chosen to have Hospice involved. Says he's "kind of tired of sitting in doctor's offices".
I'm not sure yet how I feel about it , but it's his choice.
June 7th, 08
Harry passed away at 1:05 am, a few hours after being taken to the Hospice Care Center .
I miss him SO much. My heart is broken.

 Post subject:
PostPosted: Sat Dec 29, 2007 8:06 am 
User avatar

Joined: Fri Nov 12, 2004 11:27 am
Posts: 5686
Location: PA
I can understand such a loss as I've experienced it many times. But this on top of the rest.......too much to bear right now for you. I'm sorry.


Kasey ~ 8 year survivor ~ Stage IIIb 'inoperable' (yea, right!) lung cancer
9/20/04 Dx lc
9/24/04 Bronchoscopy
10/08/04 CT guided needle biopsy
10/14/04 Dx Pancoast tumor - NSCLC 111a(?) - inoperable - incurable
11/02/04 2nd opinion - Sloan-Kettering - concurs with local dx and tx
11/03/04-12/02/04 Radiation x22 chemo x5 taxol/carboplatin
11/04 - 3rd opinion - FoxChase -turned away
11/04 4th opinion NIH - surgery possible
1/04/05 Successful surgery - RU lobectomy - all margins, nodes, and path reports are NEGATIVE
2/05 chemo x2 taxol/carboplatin
3/05 Esophagus stretched twice
4/06/05 bloodwork, chest x-ray, CT scan, PET scan, NED
5/05 2 more esophagus stretches
7/13/05 bloodwork, chest x-ray, CT scan, PET scan, brain MRI, NED
10/05/05 bloodwork, chest x-ray, PET/CT scan, NED
1/11/06 bloodwork, chest x-ray, PET/CT scan, brain MRI, NED
4/05/06 bloodwork, chest x-ray, PET/CT scan, NED
6/10/06 emergency appendectomy
7/12/06 bloodwork, chest x-ray, PET/CT scan, brain MRI, NED
9/26/06 bloodwork, chest x-ray, PET/CT scan, NED
1/10/07 bloodwork, urinalysis, chest x-ray, CT, PET/CT scan, arm CT, brain MRI, NED
7/11/07 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, NED
1/9/08 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, CT w/contrast.....mm 'spot' lower right lobe - watch and wait 3 months
4/8/08 bloodwork, urinalysis, chest x-ray, PET/CT scan, NED
10/14/08 bloodwork, urinaysis, chest x-ray, PET/CT scan, brain MRI, NED
4/15/09 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, NED
10/13/09 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, CT/contrast, NED
4/13-4/15/10 bloodwork, urinalysis, chest x-ray, PET/CT scan, brain MRI, CT/contrast, PFT, echocardiogram, EKG, stress test, NED
4/11-4/13/2011 bloodwork, urinalysis, chest x-ray, PET scan, CT scan w/contrast, brain MRI, NED
4/16-4/18/2012 bloodwork, urinalysis, chest x-ray, PET scan, CT scan w/contrast, brain MRI, NED

 Post subject:
PostPosted: Sat Dec 29, 2007 11:24 am 

Joined: Thu Mar 08, 2007 9:12 pm
Posts: 82
Location: WA
I'm so sorry for your loss blueeye. We just lost our lab last month and a day doesn't go by that I don't shed a tear for him, but the terrible sadness that I felt those first days are being replaced with happy memories and it does get easier.

Gail, thank you for sharing those websites. Here is one more about the Rainbow Bridge - I'll warn you though, it's hard to watch and keep a dry eye.

Blueeye, we understand what you are going through.:cry:

2007 -Dad is 70 yrs old - was a light smoker for a few years and quit almost 40 years ago. He's also had diabetes for almost 40 years.

Jan 2007 - Visited ER with shortness of breath and mild chest/shoulder pain. X-rays showed spot on right lung.
Feb 2007 - Ultrasound, CT and PET scans show activity in lung and thyroid.
Feb 23 - Surgery to remove right middle lobe of lung. Diagnosed as NSCLC adenocarcinoma. Tumor invaded the visceral pleura and one of four lymph nodes examined was positive. Stage 2B or 3A. A rib was fractured during surgery.
Mar 06 - Because of malignancy in lung, surgery to remove right lobe of thyroid. (Lit up on PET scan) Not cancerous!
Mar 22 - Meeting to discuss treatment. Starting chemo, Gemcitabine (Gemzar) and Cisplatin (Platinol) next week.
Mar 29 - Started chemo, day 1 and 8 with 15 days off. Plan is to do 4 cycles.
Apr 26 - Two cycles have been completed. Side effects have included hiccups, nausea, vomiting, and fatigue. Arm at infusion site became red and painful. White blood count was low - Neulasta injection given. Steroid anti-nausea medicine caused severe side effects.(extremely high blood sugar and mental turmoil)
May - Dad took chemo on the first day of cycle 3 and then decided he wanted to stop. Side-effects were too much. IVs were taking 1+ hours to get started each time. Fatigue, nausea, anxiety, blood sugar control problems,... Dr. had wanted at least 3, but preferred 4 cycles. *I'm a bit worried about this and wish he had tolerated the chemo better.
Jun 29 - CT scan was done. All clear!!
Oct 12 - CT scan; awaiting results. Check out clear.
March 14, 2008 - CT scan; still clear!
2008-11 - Scans clear.
2010-12 - Elevated CEA; new (small) spots on lung. Keeping close watch.
July 2013 - Very little change in size of spots, but now malignant pleural effusion.
July 30, 2013 - Cancer has spread to brain.
Aug 2013 WBR - 15 days
Sept 12, 2013 - Brain MRI results show the radiation worked. Chemo starts next week.
Sept 20, 2013 - Started chemo - Carbo, Avastin, Taxol
October 2013 - Extreme memory loss and confusion, no appetite, severe fatigue.
Oct - Nov. 2013 - Memory loss worsening, loss of balance and ability to walk. Can't drive any more. Stopped chemo after 3 cycles.
Nov. 29, 2013 - Trip to ER for stroke-like symptoms.
Jan 3, 2014 - 911 after falling at home. Has not been home since. Now is receiving care at nursing home. Diagnosed with radiation induced leukoencephalopathy

 Post subject: so sorry
PostPosted: Sat Dec 29, 2007 12:01 pm 

Joined: Fri Jan 10, 2003 9:13 am
Posts: 814
Location: Long Island New York
for the loss of your beautiful baby

as an animal lover, it hurts so much to lose a memeber of your family

and that is what pets become, mebers of your family

again, so sorry

nsclc stage 1A
lobectomy 6/00

 Post subject:
PostPosted: Sat Dec 29, 2007 3:47 pm 
User avatar

Joined: Fri Sep 29, 2006 2:32 pm
Posts: 2161
Location: CT
Pets are family...and so it is hard. Loss is loss.

I'm sorry.

Mom's timeline

[size=75]1996 - dx w/ Breastcancer
Bi lateral Mastechtomy. 17 lymphnodes removed and clear.
Aug 2006 - weakness and poor coordination in left hand and weak left leg.
Dr runs al types of blood tests.
Gets Nerologist appt for Mid OCTOBER!!
Sept 5 - Mom goes to ER to get tests done today. Multiple Brain lesions discovered
Sept 6 - Appt with GP who suspects breast or lung cancer
Sept 7 - Radio Onco wants to Radiate starting Sept 11, Mom begins taking Decadron
Sept 8 - Mom tells primary onco she is waiting until she knows everything before she treats.
September 9 & 10 a great weekend with mom and wife and mom's boyfriend. Mom makes eggplant parm!
Tues Sept 12 - Full body CAT shows Lung tumor with spots on liver and bones
Sept 14 - Pulminary dr walks through all cat scans with us. Shows the brain tumors...this was worse than I thought. Schedules lung Biopsy.
Sept 15 - Bone scan shows definite signs of lung cancer which had spread to the bones,
September 16 & 17 - Mom goes to Beach with my wife Keri and talks about being a parent. I build a railing for her to get up and down steps in the back yard for when she needs it. A fantastically fun weekend. Mom postpones biopsy. She says if she picks radiation, she'll do the biopsy then, because she'll already be in the hospital
Sept 22 Oncologiist is told mom will make a decision that weekend on treatment.
Sept 23-24 Mom decides to radiate but no chemo. Wants to treat the mind but chose to have her body go first. And then we got on with a great weekend and mom and Keri get there nails done and massages.
Sept 25 - mom gets mask for radiation done
Sept 26 - mom does radiation #1. Her word "piece of cake"
Sept 28 - My birthday, mom has a cake waiting for me, we brought her filet mignon. A great night.
Sept 29 - Oncologist says mom makes him laugh.
Oct 1 King crab legs for moms birthday, she's tired but enjoyed!
October 2 - Moms birthday, she is very weak and sleepy. But we spent it with her
Oct 3 - Mom is officially to tired to function. I tell her no more car. Tough conversation. But she agreed.
Oct 4 9:30 - Called mom, woke her up, told her I'd see her at 12:30 for appt.
Oct 4 12:30 - I arrive mom is confused and having trouble breathing.
Oct 4 5:30 - Mom is in Critical Care
Oct 5 7:00 - Sun shines on moms face during a sunrise one last time and she leaves us. Only 56 years old.

Today - we are not 100% and won't be tomorrow either. But notice, mom wasn't about focusing on the disease only, she was primarily about the good times!

2/25/08 Mom's granddaughter, Sophia Randilyn is born. Mom, I've already told her so much about you.[/size]


2/11/11 Mom's grandson, Nicholas Thomas IV is born. We've already talked about how his Grammy would have just loved her little man.

 Post subject:
PostPosted: Sat Dec 29, 2007 8:42 pm 
User avatar

Joined: Fri Mar 16, 2007 8:26 pm
Posts: 675
Location: Deep South Georgia
Thanks guys. I knew you'd understand. I still have my other doxie and my Mom's two pomeranians. Still quite a zoo but Zoey was my first baby. And she was a very dominate and dynamic girl. She ruled the house. I keep looking for her sweet face and counting the dogs as they go out. I have dreams of her having the seizures. :cry:

Thanks for the links, I'm going to check them out right now. I know about the rainbow bridge.

Mom: SCLC 6/7/40-11/28/07
Dad: Renal failure 1/21/35-12/13/06
*Living forever in my heart.*

 Post subject:
PostPosted: Sun Dec 30, 2007 9:36 am 
User avatar

Joined: Tue Oct 07, 2003 7:07 pm
Posts: 4775
Location: Sherbrooke, Canada
so sorry for your loss.


Husband *Mike*
dx'd nsclc Stage IIIA, inoperable, May 21st 2002
On October 13th 2003, he died at home as he
wanted, very peacefully during his sleep.
I miss you so much Mike.

 Post subject:
PostPosted: Sun Dec 30, 2007 11:57 am 
Senior Member
Senior Member
User avatar

Joined: Sat Jun 26, 2004 4:23 pm
Posts: 5606
Location: virginia
(((Blueeye))), I am so very sorry for your loss of your "baby girl". Wish there was something I could say to make the pain go away. My pets were always like my children and losing them was devastatingly painful. Again, I'm so sorry.


[size=84]husband, Mike, 59 years old
**2-01 dx'd Stage 1 nsclc-9cm tumor to right lung-no lymph node involvement...
**4-30-01 pneumonectomy right lung removed. No followup chemo or radiation , but scans and xrays were done
**1-28-04 dx w/recurrent stage IV nsclc tumor on stump of where right lung had been removed , lymph node involvement, tumor adrenal gland -lft side, **02-04-04- taxol & carboplatin 3 treatments-didn't work
**02-12-04- radiation 10 to lung for bleeding
**04-2--04-taxotere had 4 treatments. shrinkage had occured in all after 3.. continuing taxotere. making him very tired ... upper body swelling ..
** 08-01-04-in hospital
**08-02-04 had stent put in .. superior vena cava.. the vein was being blocked by pressure tumor.
**08-05-04-started 10 radiation treatments,
**08-30-04- started Navelbine on 3 weeks and off 1 Scan after 5 treatments show chemo Navelbine not working -slight decrease to lung mass, but slight increase to adrenal ....
**11-01-04-starting Gemzar ... had 3 treatments... too many side effects... Ct of chest and upper abdomen done on Dec. 2nd -results some shrinkage
**12-06-04-started Alimta Dec. 6th- first treatment went well Had 2nd treatment Dec. 27th ... developed a rash and is tired, but otherwise ok Scan Feb 7th, 2005 STABLE doing good continuing Alimta April 18th scans showed stable disease (after 6 Alimta treatments), but he now has pneumonitis... no more treatments until much better.. on prednisone and oxygen..
**05-31-05 Ct scan of chest showed pneumonitis resolved and stable cancer
**06-06-05-our 35th wedding anniversary... onc confirms everything resolving and stable -reccommends break continued til August
**6-15-05 to 6-18-05 in hospital due to mental confusion ..
had MRI-member empty head club

8-3-2005-Ct scans chest , abdomen and pelvic....Waiting and praying...
**8-8-2005-Ct results were that the chest area looked improved, but the adrenal area had increased and involved some lymph nodes.
Started Tarceva 150mg 8-16-2005-8-20-2005 stopped 2 weeks due to severe rash on 9-8-2005 started back on Tarceva at 100 mg now.. stopped again on 9-19-2005
9-30-2005 scans slight progression to nodes behind adrenal..
10-10-2005-Camptosar- CPT-11 started
10-31-2005- CPT-11
refused more CPT-11 made him extremely fatigued and nauseated
Dec. 6th -CTscans chest, abdomen & pelvic. shows stable but tumor compressing the esophagus..
Dec. 19th- had stent to trachea put in
Dec. 21st- he had stent to esophagus and feeding tube put in
Dec. 22nd.. he will ill put in hospital... vomiting and also coughing and congestion in for 4 days... home for Christmas Dec. 25th... still recouperating with antibiotics etc.
Continuing cough and numerous doctor visits.
*Jan 30th-Feb 4th- hospitalized again with cough ..
Still has cough , but controlled most of the time Hasn't been able to resume chemo

**My "prince charming", best friend, husband and soul mate,, Mike passed away March 2, 2006 after being a 5 year survivor and fighting a very courageous battle**
Mom- 78 yrs old..
nsclc diag May 2nd, 2007-surgery 2sm tumors removed in wedge section... lymph nodes clear
Tarceva as adjuvant started on June 23rd..quit July2nd.. side effects numerous... am waiting now til next appt. July 13th
July 20th... Mom NED.PET clear and normal .. will go back on half 75mg Tarceva... see how that works..
Stop Tarceva 8-25 too many side effects
Oct. 22nd- Mom surgeon visit, chest xray and results .. all clear, no sign of cancer...
Feb. 18th Mom's PET Scan
March 7th Mom's PET Scan results.. NED
Sept. 22, 08 Mom PET Scan
Sept. 29, 08 Mom PET results new nodule 3/4 "...here we go again.... :-(
*Updated*- Mom surgery- Oct. 30th.. surgeon removed top part of upper right lobe. Nothing showed malignant. She had pneumonia after surgery and a 3 week hospital stay, but she is slowly regaining her strength and is currently NED..

March 3, 2009 CT scan.... results showed some little things along suture line that the doctor believed was healing.. will wait til next scan and compare.

June 2, 2009- CT Scan.. results there is an area along suture line that has increased in size and thickening.. doctor thinks could be cancer... a needle biopsy will be done..

A quick update.. the results of the needle biopsy did confirm that it was cancer...

Cyberknife was done the first week in November..

Pet scan .. Dec. 8th...
Dec. 11th -results .. cyberknife worked and the rest of the scan is clean... YAY!!! Happy Birthday (Dec. 19th.. 81st) and Merry Xmas Mom!
Dec. 2010 NED!!!
June 2, 2011.. Pet Scan results .. NED!!!
Nov 3, 2011.. CT scan results.. NED!!!
Sept. 18, 2012 .. our loving mom has passed on ..Heaven received a most precious angel.

graphic by

 Post subject:
PostPosted: Sun Dec 30, 2007 5:23 pm 
Over 100 Posts!

Joined: Mon Apr 09, 2007 11:26 pm
Posts: 254
Location: Pittsburgh, PA
I hope my mom has been reunited with her beloved Westie she lost a couple years ago. She was heartbroken (as were we all) ... so I hope they're both going for long walks now, something neither of them could do before their deaths.

5/06 -- Mom diagnosed with Stage IIIB adenocarcinoma after symptoms of discomfort in upper abdomen (we thought it was an ulcer/gall bladder ... what a blessing either of those would've been).
Upper lobe of left lung has most involvement; pleural effusion; lymph node involvement; had fluid removed.
Surgery or radiation not an option; only chemo. Mom considered not even trying that, fearing the side effects and reduction in quality of life.
Decided to start Gemzar/Carbo, six rounds.
6/06-10/06 -- Tolerated chemo well, other than low white/red cells ... had shots, a few transfusions.
No hair-loss, mild nausea.
Mid-point scans show 60-70% shrinkage of main cancerous mass, all other areas showing clear.
11/06; Finish chemo; scans at that point show only small amount left in upper left lobe, referred to surgeon (my mother was never so happy to be told she'd have surgery).
11/06, surgeon does a procedure (not sure of the name) to remove several lymph nodes from chest; if they are all clear, surgery is a go .... YIPEE, they're "all clear".
12/06; lobectomy - upper lobe of left lung removed; a little more cancer there than they thought once they got in there ... a small amount on the top surface of the lower lobe (which the doc tried to take all of) and one suspicious looking lymph node which he removed. Also did a "chemo infusion" or "chemo wash" of cistoplatin while my mom was "open" in surgery. They infuse a high does of liquid chemo for 45 minutes to flush the area, hoping to get stray cells.
Type of cancer tested and determined it would not have been responsive to Tarceva.
1/07, post-surgical CT scan, shows NED.
1/07 goes on Alimta as precaution, 6 rounds.
3/07, PET scan ... area of surgery all clear; however, small SUV value showing on base of lower lobe, hopefully just area still recovering from surgery. Will repeat PET in 6/07 ...
New PET 6/25 revealed significant progression; onc will likely suggest Taxotere on 7/12 appointment
I can't believe this horrid beast is back and SO QUICKLY after everything my mom has been through
7/12/07 - we meet new oncologist ... previous one retired (at age 52)!!! Seems like a nice guy, is going to dismiss the "tarceva won't benefit her" theory and start her on that shortly. If that does not work, he talked of taxotere or a clinical trial. 10/07 Tarceva not working; had lung drained and pleurodesis (talc) procedure done ... not alot of relief, but feeling better. Started Taxotere 11/15/07; still SOB and weak, but chemo side effects not bad; passed away day after Thanksgiving, 11/23/07 from heart attack or blood clot. Fought a valiant fight and her family will miss her terribly.

 Post subject:
PostPosted: Sun Dec 30, 2007 6:40 pm 
User avatar

Joined: Wed Aug 08, 2007 5:38 pm
Posts: 538
Location: Wisconsin
I'm so very sorry that you lost your baby girl.


Mom & best friend, 63 yrs, former smoker-quit 01/07
4/20/07 X-ray shows large mass rt lung, needle biopsy
4/30/07 Dx NSCLC squamous cell - inoperable/incurable
5/7/07 Brain, lymph nodes clear. Rt. lung & spots on pleura & sternum
5/9/07 3 wks radiation to sternum
5/10/07 Starts 1/2 dose chemo Carbo/Taxol combo 1x for 4 wks + Neulasta
6/12/07 1st Zometa infusion-1x monthly
6/13/07 1st full dose chemo every 3rd wk
7/18/07 CT scan-NO NEW cancer
10/4/07 CT results - tumor growth to 6.3 cm - see rad onc
11/2/07 Last of 20 rad tx
11/15/07 Xray-stable!
11/29/07 1st Alimta tx–every 3 wks + Neulasta
2/6/08 Scan results look good! Some necrosis to mass in upper rt lobe
4/4/08 CT & Bone scan
4/9/08 Inflammation in sternum, haziness in upper rt lung, steroids & antibiotics
4/14/08 Rad onc - dx costochondritis in ribs–rx Aleve, Predisone for 1 mo-rad pneumonitis
5/12/08 Brochoscopy - airway obstruction
5/28/08 1st of 3 brachytherapy tx

 Post subject:
PostPosted: Mon Dec 31, 2007 12:51 pm 
User avatar

Joined: Wed May 03, 2006 9:24 pm
Posts: 92
Location: Chicago, IL
I'm so very sorry, I'm a HUGE animal lover and have 2 dogs and a cat. They become your family and are there through think and thin for you. Both my dogs are 12 and slowing down as well. I've gone through the deaths of two others. I know it's hard to think about right now, but maybe someday soon you will find it in your heart to get another "addition" to your family, you'd be amazed at how much it helps the hurt.

Stephanie (33 yrs old)
Mom - Jackie (56 yrs old)
9.25.51 - 1.21.08
Never smoker.

Feb 2006 - Diagnosed Stage IV NSCLC adeno. Right upper lobe w/pleural effusion and ribs mets on both lungs. Carbo/Taxol for 3 months. Tarceva daily.
March 2006 - Jan 2007 - Good scans with no progression. Tarceva is working!
Feb 2007 - One Brain tumor found. Treated with whole brain radiation.
June 2007 - CT Scan looks great - but inconclusive results on Brain MRI, "numerous white spots" on brain, doctor can't tell us what it is.
July 2007 - Body/Chest is stable (Tarceva is still working - 18 months in), doc confirmed spots are brain cancer, but they seem to be shrinking and becoming less due to the WBR.
Sept 2007 - Tarceva stops working :( - mom hospitalized - pleurodesis surgery done to stop fluid. Alimta chemo starts.
Oct 2007 - mom hospitalized - surgery unsuccessful, more fluid, blood clot found, and cancer has spread to liver.
Nov 2007 - Doc changes chemo to Gemzar to hopefully stop liver progression, still positive and hopeful that she will beat this monster! Mom's lost a lot of weight and is very tired and having rib pain.
Jan 2008 - liver mets have increased, pain has increased, Doc giving it one more try with vinorelbine chemo.

Mom passes 1.21.08 - it's indescribable how much I miss her voice, her face, her presence.

Mom had done amazing things - initiating a law to make November - Lung Cancer Awareness Month in IL, she was a guest on talk radio about lung cancer, also she threw out the opening pitch at the NY Yankees/Chicago White Sox game for Strike Out Cancer Day! We've raised over $3,000 for lung cancer research. She is my best friend and I'm so proud of her.

Mom and my baby Sofie born Feb 16, 2007.

Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 21 posts ] 

All times are UTC - 6 hours

Who is online

Users browsing this forum: No registered users and 0 guests

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot post attachments in this forum

Search for:
Jump to:  
Powered by phpBB® Forum Software © phpBB Group
[ Time : 1.201s | 11 Queries | GZIP : Off ]